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资源

本地资源

卡拉基金

卡拉基金卡拉基金 strives to enhance the quality of life of children with life-threatening diseases, 以及他们的家人, 通过提供物质项目, goods and services that offer physical and 情感 support for them in their time of distress. We will advocate for 儿科 patients and palliative care initiatives where possible and appropriate.

卡拉基金 supports local patient families through The Pillar Project, 新生儿重症监护病房过夜计划, 舒适护理计划, 家庭护理计划, 及家庭照顾计划.

CompassionNet

CompassionNet is a community-based 儿科 and perinatal palliative care program sponsored by the Lifetime Healthcare Companies, including Excellus BlueCross BlueShield and Univera Healthcare. YourCare健康计划也是赞助商之一. We provide support to families caring for a child with a potentially life-threatening illness as well as families expecting the birth of a child with a serious medical condition. 从诊断时开始, our interdisciplinary team collaborates with other providers to address children and families’ physical, 情感, 社会, and spiritual needs and improve quality of life.

永远爱

永远爱 is a nonprofit organization founded by Jennifer Phillips of Root and Wander Photography, which gives parents photos to remember their children by.

Perinatal and Infant Bereavement 资源 of Central New York

失去亲人的父母不应该孤身一人. Perinatal and Infant Bereavement 资源 of Central New York is committed to a standard of optimal bereavement care for the Central New York region. We work towards this goal through resource sharing, 教育, and community programs for bereaved families.

Hospice of Central New York and of the Finger Lakes

治愈心灵营

治愈心灵营 is a day camp for children who have experienced the death of a loved one or special person. Age appropriate groups provide an opportunity for children to interact with peers also dealing with grief.

悲伤中心

Our professional staff provides counseling support for children, 青少年 and the adult who are trying to help. Our young children’s room is set up with puppets, 洋娃娃的房子, 美术用品, 棋盘游戏, 书, puzzles and more to help children express and learn to cope with their feelings of grief. Call us at 315-634-1100 to schedule an appointment.

http://www.hospicecny.org/


在线资源

勇敢的父母网络

CPN is a destination created by parents, 为父母, 支持, guide and strengthen families as they care for a seriously ill child. Here you will find wisdom from fellow parents and 儿科 care providers to help you be the best parent you can be to your child and children—and get through each moment

The Compassionate Friends: 支持ing Family After a Child Dies

Compassionate Friends provides highly personal comfort, 希望, and support to every family experiencing the death of a son or a daughter, 兄弟或姐妹, 或者孙子, and helps others better assist the grieving family. The Compassionate Friends website includes several links to other relevant and supportive resources and organizations.

你的悲伤是什么??

你的悲伤是什么? offers several supportive resources for families experiencing grief.

道基中心

道基中心 offers supportive resources for children, 青少年, 年轻的成年人, 以及他们的家人 grieving a death can share their experiences. They provide support and training locally, 在全国范围内, and inter在全国范围内 to individuals and organizations seeking to assist children in grief. They are currently providing resources on coping during COVID-19.

National Alliance for Grieving Children (NAGC)

NAGC is a nonprofit organization that raises awareness about the needs of children and 青少年 who are grieving a death and provides 教育 and resources for anyone who supports them.

通过分享解决问题

通过分享解决问题 offers grief support materials and industry-leading comprehensive perinatal, 新生儿, 儿科, and adult death bereavement training to healthcare professionals globally.

National Child Traumatic Stress Network (NCTSN)

The mission of National Child Traumatic Stress Network is to raise the standard of care and improve access to services for traumatized children, 他们的家庭和社区. The website includes updated resources on racial injustice and trauma related to COVID-19.

中心有限公司

中心有限公司 is a non-profit organization dedicated to providing 教育 and resources for the bereaved of all ages.